Invisibledisease Photos & Videos

3 hours ago

🌹A-Z of Cystic Fibrosis 🌹 // Smoking // 🚭 Cigarette smoke contains hundreds of toxic chemicals that are known to cause cancer and other diseases in people who smoke. Smokers get the greatest concentration of chemicals, but second-hand smoke contains enough toxins to cause disease in people who breathe it in. Cigarette smoke also contains irritants that cause inflammation of the airways, and it damages the cilia that line the airways causing mucus to become trapped. Inflammation and mucus build-up are problems that already exist for people with Cystic Fibrosis and breathing in second-hand smoke makes these problems worse. ❣️ Studies have shown that exposure to second-hand smoke can cause problems for people with Cystic Fibrosis above and beyond the problems that it causes for other people. ❣️ Children with CF who are exposed to secondhand smoke, EVEN THROUGH THE SMELL ON CLOTHES, have a decrease in weight gain, their lung function decreases by 10% and they have an increase in respiratory infections. It also makes it even harder for them to catch a breath. As if breathing wasn't hard enough, they don't need things that make it worse. ❣️ If you have to light up a cigarette ... that's your choice...but please do it away from is. If I can smell smoke on you, don't be offended if we move away from you or say not to you having a cuddle with Flo. Of course, if you are in your home, it is your right to do what you please, but it is important that you understand we will not be taking Flo into an environment that could potentially worsen her already progressive disease. 🚭 . . . #florencejay18 #fj18cf #cysticfibrosis #cf #cysticfibrosisawareness #cfawareness #LXVRoses #sixtyfiveroses #65Roses #cysticfibrosisfighter #curecysticfibrosis #cflife #invisibledisease #65rosesmonth #cfaustralia

111
4 hours ago

Today I spent some much needed time with my love. This boy has my heart. He is so good to his brother and rarely ever complains about all the attention Owen receives. It’s so important to be able to find one on one time with your kids. I know it’s hard and sometimes virtually impossible when your juggling the day to day responsibilities on top of a child with extra needs. But today was so much fun just the two of us. I find myself always feeling so guilty because Owen gets so much attention compared to Michael. It was really awesome to give this little man some extra attention today 💚💛 ... #beckwithwiedemannsyndrome #hemihypertrophy #blogger #momonamission #motherson #largerthanbws #advocatelikeamother #spendtimeoutside #spendtimetogether #oneonone #raredisease #shouttheirworth #momofboys #adventure #bwstribe #trulytogether #raiseawareness #awareness #invisibledisease at Newtown, Bucks County, Pennsylvania

220
5 hours ago

Abortive medications: somewhere between the nasal sprays and injections, is when I start to really analyze my circumstances/how ridiculous the sheer quantity of meds I need at my disposal actually is. So here’s a look. This is why I carry a “migraine bag” everyday, y’all! 😅⁣ ⁣ What does pain management look like for you? ⁣ ⁣ #migraineur #chronicillness #migrainessuck #spoonies #invisibledisease

81
5 hours ago

This sweet little girl. She’s the strongest girl I know. Every day she has smiles upon smiles for me, even though this month has been so hard for her. Henley got super sick the end of April and we found out she had a bacterial infection. Finally started feeling better and she caught a cold. Cold was getting better and then she got another cold and her symptoms all got worse. She had a couple good days and we thought she was almost over it and then last night, she was up for hours throwing up... even though she had nothing left to throw up 😢😢 my poor girl. Having heart problems compromises your immune system and makes it easier for you to get sick. But I was hoping, since Henley’s heart is patched and looking great, that wouldn’t be the case for us. This past month is proving my theory wrong. I just want Henley to be healthy again. She deserves it. Thankfully today was a much better day and I pray tomorrow is even better 🙏🏼🙏🏼🙏🏼 . . . . . . #henleylorenbeebe #babygirlbeebe #henleylorensheart #henleysheart #chd #congenitalheartdefect #openheartsurgery #1in100 #heartwarrior #hearthero #bravelittlewarrior #helmetbaby #gtubebaby #heartstrong #invisibledisease #invisiblewarrior #shesmyhero #mendedlittlehearts #imperfectlyperfect #chdawareness #alwayssmiling #prayingforhealth #strongestgirliknow

7617
5 hours ago

"Put on a brace face" many say. Well, for me, that means taking off the "I'm fine" mask and sharing a bit more of my journey with you. Last weekend my body decided to let me pass out twice in our bathroom when I had gotten up in the middle of the night. And after spending a few days in the hospital it was decided the cause was severe dehydration and low blood pressure. So, I spent last week primarily resting and monitoring etc., which is what I've been instructed to continue to do. This is an added layer to my journey within autoimmune disorder care. Sadly or happily, depending on how you look at it, this episode did assist in getting approval moved forward for a test that the insurance company was dragging their feet on. My stitches are now out from my eyebrow, my black eye is almost a more normal coloring, and the rest of my bruises and scraps have healed. Big thank you to @vanderhugestudios for all the things that you have been doing to get me back on my feet and a little shout out to my Franklin who is great company when stuck on the couch. Plus, getting pretty flowers from family to brighten your recoup time is always a perk! 💖💗😘🌻✨📺🖍✏️💕🌈 . . . . . #stacileechcornell #art_by_stillmaybe_studios #healthcareforall #potssyndrome #dysautonomia #dysautonomiaawareness #flairnotflare #endometriosisawareness #endometriosissupport #dysautonomiasupport #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #wellnesswednesday #wellnesswednesdays #meawareness #millionsmissing #arthritisawareness #rheumatoidarthritiswarrior #autoimmuneartist #tougherthantherest #cantkeepagoodwomandown #invisibleillnessawareness #invisibledisease #invisibledisability

2913
5 hours ago

♡ Rest in Paradise ♡ I had allot of memories with you. My junior high , high school, continuation school. 💜 You inspired me to keep drawing , you motivated me to keep doing the things I loved doing. 🎨 You were there when I was going through stuff In school. You listened to me with my drama. You told me all the adventures with Evelyn and everything about her, you would vent about your family. We had music in common. I remember, us listening to my mp3 player or ipod at la vista and just hangout. 🎧🎶 You always messaged me how I was doing or how my son was doing. You went to my son birthday party. Last time i seen you , we were at your going away party. You talked to me and make sure I wasnt just sitting there alone. I was so awkward there, but you keep me company knowing I didnt know anyone there. 🤭 You were so sweet and had such a big heart. I wished we had more time to talk or hangout. I'm glad you were happy with your husband and your little animal family. 👑💍 @sarahmgv 💜 #invisibleillness #lupus #lupusawarenessmonth #lupusfighter #spoonie #invisibleillnessawareness #invisibledisease #invisibledisability #rip #restinpeace

201
6 hours ago

I know that sinking feeling too well when we look around and see so many incredible women shining with success and feel like we’ve missed our chance. Let me tell you this is a LIE! For a start don’t you dare think for a moment that these women we admire haven’t had their share of pain. We’ve all heard women say... oh it’s ok for them her husband supports her or she’s healthy! Do not fall into this trap it only hurts you!! Plus I do not believe the rubbish once fed to us that life only gives you so many goes. Whether it’s because you’ve been chasing toddlers around or health challenges or just stuck in a job you hate because someone’s got to feed the family, let me tell you my darling friend do not stop dreaming! Dream big! YOU CAN AND YOU WILL! #youcanandyouwill #keepinmindproject

204
6 hours ago

People assume that when the body hurts, there is something wrong with it. Before you take it into the ‘shop’, consider that your body has an unmet need it is trying to communicate to you. It might even be that you are contributing to the ailment. . . #selfcare #selfcaredaily #preventativehealth #preventativemedicine #preventativecare #homeopathy #homeopathic #homeopathicmedicine #illness #chronicpain # youcanhealyourlife #chronicpain #painmanagment #chronicillnesswarrior #anxietywarrior #itsokaynottobeokay #invisibledisease #chronicpainwarrior #chronicallyill #butyoudontlooksick #sicklife #raiseawareness #chronicillnessawareness #healingjourney #wellnessblogger #hamiltonontario #dundasont #emotionalhealing #takeresponsibility #youcanhealyourlife #healyourself

150
6 hours ago

#chronicillnessandme Day 22: Gratitude 💙✨I don’t half moan a lot about how things are now. I get angry, upset and distressed, scared and lost, but I also have a new found sense of gratitude. You don’t realise all that you had, until it was lost. Now (when I’m having slightly brighter days or my mood is better) I can really absorb myself in everything that I have. I appreciate the smallest things. Today I cried, took myself back upstairs into my room and planned on staying there. Then later on I decided to take a step outside just so I could feel the sensation of the wind on my face, that was all. For a moment, I felt grateful that even though my day was miserable, I was able to A) go outside B) breathe the air C) stand on my own two legs D) look at trees E) made sure that my illness didn’t completely take control of what I did with my miserable day... We are allowed to be ungrateful, that’s important to know. We deserve to feel however we want to feel. Being sick is going to make us feel ungrateful sometimes. Yet being sick makes people see the world differently and realise how important every second of ‘not being miserable’ really is. - challenge made by @spoonie_village 💕 #yourachingart #myalgicencephalomyelitis #meawareness #meawarenessmonth #myalgicE #chronicillnessawareness #invisibledisease #chronicfatiguesyndrome #canyouseemenow #meaction #millionsmissing #butyoudontlooksick #millionsmissingspeakout #chronicpain #chronicmigraines #anxiety #depression #spoonie #spoonielife #mayawarenessmonth

151
6 hours ago

Right now, I’m too exhausted to pick which one I am 😩. What are you in this moment?

13512
7 hours ago

ALL WE HAVE IS NOW, so why do we worry? _____ Sometimes we can get so lost in our own thoughts that we start to see problems where there really aren’t any. We begin to worry about things that are completely out of our control. Things like the future and even the past.. when all we really have is right now. This exact second. What’s in the past is done and the future isn’t guaranteed so why do we worry so much? Why do we let ourselves get lost in fear and anxiety. I say ‘we’ because I doubt I’m the only one that worries or overthinks (or maybe I am 🤷🏻‍♀️). But in case I’m not the only one I figured I’d share some tools that have helped me in these moments: 1. Meditate. When you feel yourself spiraling down the worry rabbit hole, stop and turn inward. Grab your journal (or your notes app) get outside, light a candle if you want.. and write everything down. Release all those worries onto paper and then focus on everything you’re grateful for. Focus on gratitude and abundance and everything you’d like to attract to your life. The key is to envision (and realize) that everything you want is already yours. 2. Essential oils. Balance, wild orange and bergamot are my go to oils in moments like these. Grounding, uplifting and reassuring, they’re honestly the perfect mix to add into any meditation practice or to simply chill out when you need it most. 3. Communicate. Whether that’s with your partner, a family member or your best friend. Sometimes all you have to do is say it out loud to someone who loves you to realize how off balance those thoughts really are. . *Last but not least, Laugh. Laugh as much as you can, as often as you can. Laughter really does help so much! Forget everything, release your fears and focus on right now. Because that’s really all we have. #meditate #allwehaveisnow #morethan . . *** ps special shoutout to @thehaileyallen for putting up with me and taking my picture in front of this adorable little house thing after a long day of walking... she’s the real mvp *** at Denver, Colorado

10019
7 hours ago

🇫🇷 avoir une fibromyalgie c'est aussi apprendre à se dépasser et à aller au bout de ses rêves. L'un des miens était de decouvrir la bibliothèque de Tianjin, une merveille pour les yeux ! Et vous quels sont vos rêves ? 🇬🇧 having fibromyalgia is also chasing our dreams. One of mine was To discover this library of Tianjin, a wonder for the eyes ! What's your dream ? . . . . #fibro #fibromyalgie #fibromyalgia #travel #adventure #traveler #traveller #china #library #travelgirl #dream #dreamgirl #travelingadventure #voyage #voyager #traveling #embraceyourself #liveyourself #pain #invisibledisease #fibromyalgiawarrior #painwarrior #youdontlooksick #fibrofighter #ladygaga #fibromyalgiaawareness #douleur #maladieinvisible at Tianjin Binhai Library

160
8 hours ago

I’m officially a zebra! I had my geneticist appointment today and received a diagnosis of Ehlers-Danlos syndrome hypermobility type, also known as Ehlers-Danlos syndrome Type III, and according to my doctor, “The worst case of Mast Cell Activation I have ever seen.” This could be hard to hear for some, but for me, it was a wonderful day that included this free book! I now have validation about a thought that’s been in the back of my mind since I can remember. The thought that I’m different. A feeling that wasn’t really validated by a lot of the people around me. It’s tough when you’re expected to be on the same level as your peers physically, and you’re just not. No matter how hard you try or how much you want to be, you’re. just. not. For a large part of my life I would beat myself up for not being able to do things as well as my friends, I couldn’t run as fast, exercise as hard or handle stress in the same way. Why was I allergic to everything, why couldn’t I breathe, why did my body hurt and get injured so much? No one knew. When you’re too complicated for the average doc to figure it out, they usually jump to the conclusion that you’re making it up. This is the worst feeling in the world, to know you’re not crazy, you have a real issue and need help, but there is none. Today I found help and it feels amazing! I have an answer, I have a reason and I have a plan and it only took 38 years lol. I know there’s still a lot that’s unknown about EDS and there’s no cure, only just management of symptoms. But now I know what to focus on managing, and for that I am beyond grateful. I wish I could go back to the little girl who thought she wasn’t good enough and have a chat with her. I would tell her that it’s not her fault and some day it’s all going to make sense. To stay strong because the road ahead is going to be a rough one but at the end, she’s going to realize a lot of wonderful things about herself. That she wasn’t weak, she was strong, she wasn’t crazy, she was in pain that no one could see. That she wasn’t less than everyone else, she had been living with something that would break most people, but NOTHING would ever stop her from living.

6127
8 hours ago

Maybe on this hump day Wednesday, this clock is even more relatable??🤷‍♀️😩🤷‍♀️😴 To all those battling this type of clock day in & day out, I beg you to be kind, gentle, & loving to yourselves just as you so selflessly are to all those you love🦋💜🧡🦋 #MILupus #lupus #lupuswarrior #lupusawareness #lupuslife #chronicillness #chronicpain #invisibledisease #toostrongtogiveup #notdefinedbymydiagnosis #onedayatatime #onestepatatime #strongerthanyouknow #supportnetwork #dontfightalone #lupuscommunity

412
8 hours ago

Absolute truth. #Repost @fibrocoach (@get_repost) ・・・ You could ask any #fibromyalgia person on the planet, "Do you think weather affects fibromyalgia?" And you're most likely to get a very definitive, "YES. Yes, weather affects me."⠀⠀ ⠀⠀ For me, it doesn't matter whether the barometric pressure is high or if it's low. The problem is when it changes, when it goes from high to low or from low to high! Every spring and fall my migraines are worse because of this. I've found this to be true for many of my students and clients as well.⠀⠀ ⠀⠀ Can you relate?⠀⠀ ⠀⠀ Check out Episode 10 of the Fibromyalgia Podcast for more information on how weather affects fibromyalgia and tips on how you can keep warm when it's cold..⠀⠀ ⠀⠀ Listen online at: Fibromyalgiapodcast.com/10, on Apple Podcasts, or on Google Podcasts.⠀⠀ .⁣⠀⠀ .⁣⠀⠀ .⁣⠀⠀ .⁣⠀⠀ #fibrocoach #fibromyalgiacoach #healthcoach #fibrowarrior #healthandwellness #spooniesisterhood #fibrolife #courage #selfcare #selflove #chronicpain #autoimmunedisease #invisibledisease #chronicillnesswarrior #chronicpainawareness #chronicpainwarrior #fibro #spoonielife #spoonie #fibromyalgiadiet #fibromyalgiawarrior #spooniesupport #selfcareeveryday #selfcaretips #selfcaretime #selfcarethreads #selfcareroutine #fibromyalgiapodcast⠀⠀

110
10 hours ago

I caught this pic of a CUTE longhorn 🐄 while at a luncheon in my state of TEXAS. Do you ever think the grass is GREENER somewhere else? It’s not TRUE! The grass is greener where you water 💦 it. So, “Water” yourself and watch how YOU grow. 🌸

211
10 hours ago

Prayer changes things. I had my 1 month post op with my surgeon today. He said normally people who have this surgery are able to be more mobile and do more between 1-3 months but since mine was a very complex surgery and where he normally might touch one nerve root he touched all my nerve roots so I should not expect to be mobile and able to do much before 6 months to a year. He said I am at the very beginning of a long recovery, so to be patient 😭😢 I told him I can’t do that... I have things to do and I already have cabin fever 😂 i tried to keep my composure, but even though i knew he was going to say it, I didn’t want to hear it. I am going to be wise and not push it, but also believe that our timeline is not the same as God’s timeline and believe my healing will come sooner.

87773
10 hours ago

You could ask any #fibromyalgia person on the planet, "Do you think weather affects fibromyalgia?" And you're most likely to get a very definitive, "YES. Yes, weather affects me."⠀⠀ ⠀⠀ For me, it doesn't matter whether the barometric pressure is high or if it's low. The problem is when it changes, when it goes from high to low or from low to high! Every spring and fall my migraines are worse because of this. I've found this to be true for many of my students and clients as well.⠀⠀ ⠀⠀ Can you relate?⠀⠀ ⠀⠀ Check out Episode 10 of the Fibromyalgia Podcast for more information on how weather affects fibromyalgia and tips on how you can keep warm when it's cold..⠀⠀ ⠀⠀ Listen online at: Fibromyalgiapodcast.com/10, on Apple Podcasts, or on Google Podcasts.⠀⠀ .⁣⠀⠀ .⁣⠀⠀ .⁣⠀⠀ .⁣⠀⠀ #fibrocoach #fibromyalgiacoach #healthcoach #fibrowarrior #healthandwellness #spooniesisterhood #fibrolife #courage #selfcare #selflove #chronicpain #autoimmunedisease #invisibledisease #chronicillnesswarrior #chronicpainawareness #chronicpainwarrior #fibro #spoonielife #spoonie #fibromyalgiadiet #fibromyalgiawarrior #spooniesupport #selfcareeveryday #selfcaretips #selfcaretime #selfcarethreads #selfcareroutine #fibromyalgiapodcast #fibropodcast⠀⠀

815
11 hours ago

THE MAGIC PILL . . Have you found the magic pill yet? I think that is kind of what we all want, right? A specific answer, a quick fix, a guaranteed treatment. The truth is when people ask me okay what's the protocol, what's the quick fix, I'm really honest. . . Every "fix" looks different. Your symptoms of chronic fatigue, joint pain, anxiety, insomnia, gastrointestinal issues, hormone imbalance may be worsened by Epstein - barr virus, but chances are that is not the only thing going on. . . Each person is different - genetically, physically, mentally, emotionally, and spiritually, what works for one wouldn't make a dent for another. . . This is why I chose to study Naturoapthic medicine. It takes all of these into account. You need a detective and someone that spends time with you creating goals and a plan specific to you! . . The MAGIC PILL is developing healthy habits, lifestyle and food choices, exercise, stress management, supplement regimens, and patterns that are exactly what YOU need. . . Part of healing is learning more about your health and understanding not only how to heal, but how to stay well. The best medicine is preventitive medicine. #chronicillness #chronicwarrior #chronicwarriors #lyme #lymedisease #lymedontkillmyvibe #thyroidproblems #thyroidhealth #hypothyroidism #invisibleillness #invisibledisease #hashimotos #fatigue #sotired #naturopathicmedicine #healthandwellness #optimalwellness #ebv #warriorhealth #naturopathicdoctor #naturopathicmedicine #wellnesswarrior #wellnessjourney #wellness #epsteinbarrvirus #epsteinbarr #notreatment

993
12 hours ago

Dear Friends - I'm proud to be working with MGFA on an important campaign to support the Myasthenia Gravis Foundation of America, Inc. I am now a finalist in the video contest, after sharing my story of #IAmMGStrong. Help me, Leah De La Torre raise awareness by sharing my video and encouraging people to vote for me, Leah De La Torre at: https://fundduel.com/MGStrong Spread the world and help us create #aworldwithoutMG! @FundDuel @MyastheniaGravisFoundation #IAmMGStrong #ihavemg #MGAwarness #MGresearch #worldwithoutMG #invisibledisease #supportgroups #caretaker #myastheniagravis #musk #mgwalk #mgstrong #contest #raredisease #autoimmunedisease

102
12 hours ago

Dear Friends - I'm proud to be working with MGFA on an important campaign to support the Myasthenia Gravis Foundation of America, Inc. I am now a finalist in the video contest, after sharing my story of #IAmMGStrong. Help me, Leah De La Torre raise awareness by sharing my video and encouraging people to vote for me, Leah De La Torre at: https://fundduel.com/MGStrong Spread the world and help us create #aworldwithoutMG! @FundDuel @MyastheniaGravisFoundation #IAmMGStrong #ihavemg #MGAwarness #MGresearch #worldwithoutMG #invisibledisease #supportgroups #caretaker #myastheniagravis #musk #mgwalk #mgstrong #contest #raredisease #autoimmunedisease

130
12 hours ago

Sorry I’ve been quiet this week I haven’t been in the right frame of my mind for my usual posts and had to take a couple of days off work but I’ve been back today 🙌🏻 so I’m going to put a few questions on my story now!! If anyon would like to join in then please do, just use my picture and the hash tag and don’t forget to tag us so we can take part in your quiz too!! 💜💜 . . . . #WizzQuizWednesday #wizzquizwednesdays #Quiztime #GettingToKnowYou #GettingToKnowEachOther #Fun #LiftingTheMood #MentalHealth #mentalhealthawareness #mentalhealthawarenessmonth #invisibleillness #chronicillness #anxiety #invisibledisease

204
12 hours ago

Tylenol ✔️ Solu-medrol ✔️ Benadryl ✔️ Ocrevus ✔️ 2nd round of Benadryl ✔️ • On Thursday, I had my first full dose of the Ocrevus infusion. I was so nervous the days before the infusion, but it did not end up being such a bad experience. In November, when I had my 2 initial infusions of Ocrevus I had such a difficult time, for that reason I was a little scared this time around. In my first Infusion I felt a lot of itching on my face and throat, I felt that my throat was closing, which caused me anxiety. They had to stop the infusion several times. My MS specialist ordered for me to have IV Benadryl instead of the pills during the initial preparation of the infusion to prevent the side effects. That helped me tremendously this time around. I had a bit of itching on my face and throat, but nothing compared to my first infusion. This time they only had to stop the infusion once to administer me a second round of Benadryl to help me with the side effects. • Also, this time I came prepared with my audible book, Netflix and snacks to entertain myself during the 6 hours in that chair, but I think that with all the Benadryl that they gave me I ended up sleeping most of my infusion. • • • #ThisIsMS #MSJourney #MS #MSAwareness #MultipleSclerosis #CureMS #LivingWithMS #StrongerThanMS #AutoimmuneDisease #InvisibleDisease #ChronicIllness #EsclerosisMultiple #EsclerosisMúltiple #NeverGiveUp #MSWarrior #MSFighter #EndMS #MSFamily #LifeWithMS #RendirseNoEsUnaOpcion #WeNeedACure #Inspiration #MSBlogger #MSSociety #Ocrevus #OcrevusInfusion #IGotThis #IWillWin #WednesdayWarrior #IamStrong at Cedars-Sinai

12413
13 hours ago

What a nice thing to receive in the post today being my 4th Crohnsiversary. My only aim is to make Crohn’s Disease more visible and raise as much awareness as I can, and to speak about it as often as I can so first things first. We’re participating in the Crohn’s & Colitis Walk It on the 8th June. It takes guts to talk about Crohn’s & Colitis but no one can see it until we say it and although we look fine on the outside, it’s a different story on the inside. It's time to speak up and break down the stigma 💜 let’s make the invisible, visible. • • • • • #crohnsdisease #crohns #crohnsawareness #crohnswarrior #crohnssucks #crohnslife #crohnsandcolitis #crohnscolitis #ibd #ibdawareness #invisibleillness #invisibleillnessawareness #invisibledisability #invisibledisease #ibdwarrior #ibdsuperheroes #supportyourfriends #supportive #crohnsgirl #disabilityawareness #makeitvisible #inflammation #excited #excitement #crohnsandcolitisuk #fuckcrohns #crohnssurvivor #anniversary #ibdvisible at London, United Kingdom

260
13 hours ago

I‘ve been dining at my all time favorite Italian restaurant today - it’s been delicious!! 😋😍😋

191
13 hours ago

The snow might be melting like CRAZY in the sun today (it sounds like it’s pouring rain outside from the melt-off), but it’s still cold. This time, I had to put the shorts aside and come back to soft pants, slippers, and a hoodie. Aaaaand because my neck and migraine are STILL bad, I’ve been using my heated Huggaroo all morning. I’m just so ready for this to go away, like, to the point where I am beyond words. 😢 . . #mugshot #coffee #owls #cold #spoonie #spoonieproblems #nospoons #chronicillness #chronicpain #chronicmigraines #chronicfatigue #pain #migraine #fatigue #invisivleillness #invisibledisease #invisibledisability #millionsmissing #meaction #myalgicencephalomyelitis #mecfs #fibromyalgia #cfs

334
14 hours ago

Diabetes is so freakin dull sometimes and it can be awful😒 So i’m gonna start my own shop selling all sorts of cool designs to do with diabetes! As of now, stickers designs are in the making and will hopefully be avaliable soon! - I’m very open to suggestions so what sort of things would you like to see?✨

555
14 hours ago

When people ask what I’m doing today: Pretty much this, all day errday. It is so hard when you feel like life is passing you by. When the most simple things are hard to do...it’s been a month since surgery and I still can’t dress myself, sit up or walk unassisted. Hope and faith are easy in the beginning and patience seems doable. It’s “only” been a month, but it feels like eternity. What happens when you’ve prayed all the prayers and cried all the tears? When faith seems thin and hope far away....He is still good and His love for me has not changed. My feelings do not dictate His goodness. So today I am thankful. For the birds singing so loudly outside my window, for the 17th painted rock my daughter has left by my bedside, for the sweet hugs of a little boy who is so excited to “babysit” mom today, for friends who send silly texts and for amazon prime. Life is still good. Today is still good. It was dark, but the sun still rose, and it will rise again tomorrow...

36247
15 hours ago

I’m stressed and I’m tired but I will have no regrets. By the beginning of summer I will be sat in our own home. By the end of summer I will have my baby boy in my arms. And... in a few years I will be a doctor. Yes I’m doing three of the hardest and most challenging things in life (at the same time) but gosh I cannot wait for the future to enjoy all three! 🏠👶🏼👩🏼‍🎓 #chronicallysuccessful

1466
15 hours ago

Making the invisible ➡️ visible: “EDS & dental complications.”⁣ ⁣ Spent another 3 hrs in the dentist’s chair; painful to my “bobble head,” “spear neck” (cervical lordosis), & TMJ. 1 terrible root canal 18yrs ago took 6hrs, dislocated my jaw, & put me on a liquid diet for over a month. The next year, that tooth had to be pulled b/c it cracked down the roots & inflamed the nerves. 😤 fast-forward 17yrs, & I have broken, cracked, dislodged, or extracted all my molars. Yesterday was visit 3 in correcting all. Years of bruxism, fragile teeth, multiple cavities (deep crevasses... see subsequent screenshots), & my back teeth were painfully breaking apart. Crowns, falling out of my mouth. Those stress dreams of loosing your teeth IRL. I had 1 pulled in January get dry socket, despite having none of the “common conditions” that lead to that painful complication. It simply bled for 9 hrs & didn’t clot, leaving painful nerves/jaw bone exposed & extended my healing time. Go figure!⁣ ⁣⁣⁣⁣⁣⁣ 1 permanent crown. Displaced crown reattached (twice! Fell out again while I was there!). Temporary crown & temporary bridge (2 crowns w/a fake tooth in the middle). A filling that fixed 1 cracked in 1/2 (other 1/2 tooth got a temp crown). In 2 weeks, permanent bridge, permanent crown & likely 2 more temp crowns on lower molars. Eventually, I’ll get fit with a good quality night guard to hopefully protect all this dental work! 👀 REALLY don’t want anymore teeth falling out of my face. ⁣ ⁣ It was embarrassing to share all this, but, it’s part of my story. Thanks for reading. Gentle hugs... ⁣💜💜💜⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣⁣⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣⁣⁣ #ehlersdanlossyndrome #ehlersdanlos #zebrawarrior #zebrastrong #invisibleillness #edsawareness #chronicpainawareness #invisibleillnessawareness #invisibleillnesses #heds #invisibleillness #edsawareness #chronicpainawareness #butyoudontlooksick #edsgrrls #invisibledisease #livingwithchronicillness #chronicpainwarrior #chronicpainlife #edswarrior #livingwithchronicpain #livingwithinvisibleillnesses #ehlersdanlosawareness #ceds #ehlersdanlossyndromes #ehlersdanloswarrior #youdontlooksick #edsawarenessmonth

6010
15 hours ago

A new friend named Stacee Hoffee posted on Facebook about how she is spreading Travis’ love throughout the world. We were so excited to see he’s made it to #Panama now! This is what Stacee wrote: I have a dear friend her name is Julie Brown she lives in Mesa, AZ, I was visiting her in April and she gave me this beautiful #ROCK to put somewhere special. I was en route to California with the intention of putting it at Bodega Bay which is close to my brother’s house. I never made it so the ROCK travelled with me to Yakima, WA and then home to Panama where my husband and I have a house. I knew the perfect place for this special ROCK it was down the road at Playa Venao, which is one of the best beaches in our area. May the next person carry it with them as I have.... #spreadtravislove Thank you to Julie Brown for sharing Travis’ rock and thank you to Stacee Hoffee for carrying it all over the western US before finally choosing such a beautiful beach in Panama to place the rock. May Travis’ love be global! at Playa Venao

171
16 hours ago

English below _ Je ontlasting vertelt veel over het functioneren van je lichaam. _ Bij Crohnproof werken we samen met een particulier laboratorium gespecialiseerd in ontlastingsonderzoek. _ Door dit onderzoek wordt duidelijk hoe je lichaam functioneert. In veel gevallen Maakt het duidelijk wat de oorzaak is van de ontsteking in de darmen. _ Wil jij weten wat er in je lijf gebeurd? Wat de oorzaak is van de chronische ontsteking? Via de link in onze bio lees je meer over dit onderzoek. Klik op de website op de Nederlandse vlag voor de Nederlands website. _ _ Your stool tells a lot about how your body functions. _ At Crohnproof we work together with a private laboratory specialized in stool research. _ This research gives insights into how your body functions. In many cases the research reveals what the cause of the inflammation in the intestines is. _ Do you want to know what happens in your body? What the cause is of the chronic inflammation? You can read more about this research via the link in our bio.

341
18 hours ago

Don’t just take our word for it! Read why Maggie recommends Paloma Health.⁣⠀⁣ ⁣⠀⁣ #PalomaHealth

191
19 hours ago

My turmeric and seeds bread. Gluten isn't a trigger for me, but I still limit my intake. And turmeric is so good against inflammation. @eightysixtheendo That what it looks like. Fresh from this morning 😉 . . #endometriosisawareness #endometriosis #thisisendo #thisisendometriosis #1in10 #endowarrior #endowariors #livingwithendometriosis #livingwithendo #everydaylifewithendometriosis #chronicillness #livingwithachronicillness #chronicallyill #invisibleillness #invisibledisease #turmeric #turmericbread #homemadebread #homebakedbread

304
19 hours ago

We love being able to share clips of educational information to help anyone on their journey to become parents. If you could tell anyone getting ready for a new consultation with a fertility specialist three things to ask – what are the top three questions you would share with them?⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #TennesseeFertilityInstitute #TennesseeFertility #LoveTFI #TFIBaby #FertilityNashville #Nashville #FranklinTN #ttccommunity #fertilitydoctor #fertilityawareness #infertilityawareness #rainbowbaby #infertilitysupport #infertilitysucks #ivfjourney #infertilityjourney #ttcjourney # infertility #infertilitywarrior #infertilityfighter #growingfamily #invisibledisease #fertilityclinic #fertilityanswers #fertilityfacts #nashvilledoctor #drchrismontville #nashvillefertilityclinic #unexplainedinfertility

141
21 hours ago

Enough with the photos! Hey everyone, we are going to be taking a break from Instagram for a bit, health plus stress has created a situation where I just can’t keep up with this account for the next few weeks... but WE WILL BE BACK!! Love you all and see you in awhile. #servicedog #servicedogs #servicedogsofinstagram #servicepoodle #poodle #seizure #seizurealertdog #seizurealertservicedog #servicedogteam #servicedogintraining #epilepsy #epilepsyawareness #dog #dogsofinstagram #dogs #workingdog #workingdogsofinstagram #workingdogsofig #invisibledisease #invisibledisability #invisibleillnessawareness #invisibledisabilities #epilepsywarrior

482
1 day ago

So... I felt well enough to make these for my brother-n-law today! Tomorrow we’re celebrating my sister-n-law’s (and his) birthday, and I can’t wait! Im just praying that I wake up feeling well enough. . . . . Unfortunately I had to sit on my chair at the oven because my hips are burning so bad tonight, and I needed to set my bowl down a couple times because my arms, hands, and fingers hurt so much.🙄 #lupus #lupussucks . . . . It made me think about all of our everyday movements that our bodies make in which we take for granted. That is, until we’re in severe pain. Such as... you never really notice your fingers grabbing ahold of something or gripping something. Or your fingers writing, or holding onto something, until you break a finger, or until you live with chronic pain, ya know? . . . . It’s really quite amazing all the things our bodies do. They can work simultaneously without us having to consciously think about the movements we’re making. #godisamazing #godscreation . . . . I want all of you who are in chronic pain, have a terminal illness or disease to know that I’m praying for each and everyone of you.🙏🏼 Please stay strong, and continue counting your blessings... I know they’re hard to find when you’re hurting so much, but they are there. God bless, I love all you warriors out there! 😘 . . (BTW: I’m on day 6 of my healthy eating plan! And, I didn’t even lick my cookie dough spoon! Yay me!!! #optavia #thankyouoptavia ) . #lupusawareness #lupusflare #lupuswarrior #lupusproblems #lupusfighter #lupuswarriors #lupuswarrior #lupuswarrior💜 #lupuslife #lupussurvivor #lupuschick #lupusstrong #lupustruth #lupuscommunity #lupus #health #chronsdisease #raredisease #invisibledisease

132
1 day ago

We should never let any disease or disability define who we are and what we can and cannot accomplish with our life. Some of us just face more challenges and struggles than others to fulfill those dreams and goals, and hey.... it may take some of us twice as long to do it, but we can still do it! In 2016, I earned 2 diplomas in photography even though I found it quite difficult some days to concentrate on the material that I was learning. Half way through the first course, I told myself I wasn't about to let the MS tell me I cant follow a passion I've always had and ended up finishing 2 courses. I'm no professional by any means, but I enjoy the hobby of it and have earned several awards on some of my shots....fuckMS! #multiplesclerosis #ms #msawareness #msstrong #mssymptoms #mslife #msfatigue #msgirl #livingwithms #lifewithms #mslife #fuckms #mswarrior #autoimmunedisease #activewithms #msfighter #fightingmultiplesclerosis #fightingdisease #mssucks #invisibledisease #loveyourlife #liveyourbestlife #invisibleillness #goals #accomplishment #photography # #behappy #photographydiploma #diploma

174
1 day ago

Being a warrior is exhausting 💛🎗

29816
1 day ago

It’s not one thing but everything! And when I say everything I mean EVERYTHING! Sorry folks but there is no magic pill! And no one size fits all either. We are all created with completely individual bodies minds and spirits so therefore our health needs are also all individual. * * If you desire to change your world but don’t know where to start my advice would be to begin by paying attention. * * Attention to your choices, your habits, your thinking. Take notice. Did I walk on the grass today? How did I feel after eating that food? Do the people I follow on social media feed my soul or destroy it? 1. Pay ATTENTION 2. Are these habits serving me well? 3. Start living with INTENTION #keepinmindproject

254
15 days ago

Bonjour 🙂 Je reviens avec un livre agréable à lire "Je ne sais plus pourquoi je t'aime" de Gabrielle Zevin. On y suit une fille qui devient amnésique et qui enquête sur la fille qu'elle était avant pour comprendre qui elle est vraiment et ce qu'il s'est passé. C'est une histoire que j'ai beaucoup aimé et un livre que je garde dans ma bibliothèque. 📖 Vous l'avez lu? Vous aimez ce genre d'histoire ? Vous aimez la photo? . . #maladie #medecine #infirmiere #malade #maladiechronique #paris #love #handicap #amour #solidarité #etudiants #ensemble #blouseblanche #sida #sport #picoftheday #étudiante #montpellier #invisibledisease #servicecivique #telethon #infirmiére #life #infirmiers #sick #infirmier #coach #etudianteinfirmiere #force #lecture

22222
2 months ago

My friend Lorena (Crafty Girl in the Woods) approached me a few weeks ago with an idea to share Travis' story in a way that would make a 4 year old boy who loved being outdoors smile. In the months since Travis' death, she had started drawing hearts in the dirt while out on her hikes. She decided to take it a step further and start painting rocks. Orange. Bright orange. Travis' favorite color. Travis loved craft projects, he loved building things, and most importantly, he loved life. He was love. Now, her rocks will include T.E.A.M. 4 Travis' website. Won't you help us Spread Travis Love? As Lorena says, "If you find one of Travis’ rocks, please pick it up if you need a little LOVE, or rehide for someone to find. Whatever you decide to do, please make sure you take a pic and post and tag #spreadTravisLOVE . Lets see how far we can get this to go. If you want a rock to help #SpreadTravisLove, let me know, and the next time we see each other, I will try to have one with me. Please feel free to share this post." at Arizona

679
3 months ago

Today is the first day of #endometriosisawarenessmonth 🎗️ * In June 2017, I like 1 in 10 women was diagnosed via laproscopic surgery with endometriosis. At that point I had little knowledge about what endo even was or would fathom the impact it would have upon myself. Two surgeries later and it's safe to say endo has brought a lot of pain and unsurety into my life. * But in turn living with endometriosis has also taught me how to be paitent, it's showed me how strong I can be and most of all it's taught me to take nothing for granted-to embrace the good days and the people who are there for me at the end of them. * "Endometriosis is reselient and it continues to grow. But women with endometriosis are also reselient and we continue to fight." 💛💛 * * * Very un-glam photo (but a reality) from my second laproscopy dated 26/07/2018 * #endometriosis #adenomyosis #endometriosisawareness #endomakeyourselfaware #endowarrior #endobelly #endostrong #endosisters #1in10 #laproscopy #invisibledisease #chronicpain #chronicillness #butyoudontlooksick at Christchurch, New Zealand

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