11 days ago
Zoey has Esotropia, a type of eye misalignment called Strabismus. "Eso" means inward in Greek and "tropia" means turn - her left eye turns inward.
Her ophthalmologist thinks it has been caused by the pressure before her surgery due to her Craniosynostosis.
So far it's being treated with patch therapy and glasses. I've found it really, really hard to get her to wear glasses! She constantly just rips them off. At her last check up they said they didn't think the glasses will help much because her vision is actually fine, the squint is caused by tightness in the muscles behind the eye.
Sometimes Strabismus can cause double vision but Zoey has no signs of this as her fine motor skills are very good!
She wears her patch once a day for 15 minutes, which really isn't that bad and she's not bothered much about it until recently, now she knows how to take it off so I constantly have to keep her distracted from pulling at it. Often I give into screen time as it's the best way to completely distract her. If she's happy and doing well with it I will leave it on a bit longer.
The patches don't fix her squint but help her eyes to learn to work together. Now she alternates her squint between both eyes and this is what the opthalmologists want. Now they are talking about operating to loosen the muscles that are too tight and pulling the eye in.
I know it's all minor compared to what she's been through and it could be worse. But I can't help but get tired of all these appointments and her having to put up with being poked and prodded and having glasses and patches on and off every day. The surgery, while minor still scares me because she's already been through so much!
I'm so used to her squint now that often I don't even notice it, and of course I think she's beautiful even with the squint but I know as she gets older and more aware that she will hate it and other kids can be cruel!
She's a courageous and strong little girl so I know we will make it through anything that comes our way 💜 but it's hard, all you want for your baby is to live a happy, peaceful and care free life!
I'd experience her suffering 10x over if only I had the power to take it from her 💜