6 hours ago
This #MemberMonday meet Board #Secretary and fellow #Dravetmom, Kate Hintz!
Kate’s daughter Morgan was diagnosed with #Dravetsyndrome at only 6 months old. Although they received an early diagnosis, Morgan was medically fragile for the first 2 years of life; suffering frequent #seizures and related medical complications. Her family turned to organizations like the #DravetSyndromeFoundation for guidance and support. The outreach and leadership of DSF inspired Kate to get involved in #advocacy work.
Next week Kate and her husband Curtis Jones are holding their third annual #CityBash #fundraiser in #NewYorkCity at @farmerandthefish_gramercy. This fundraiser is an amazing event for our community supporters to come together, hear the stories of our community, and support our efforts to aggressively fund research for Dravet syndrome. Learn more at www.citybash.org
In addition to her work with DSF, Kate joined Compassionate Care NY in 2013, a group raising awareness for patients using or in need of medicinal cannabis in New York state. She currently volunteers as State Director. Prior to this, Kate spent 10 years in the wedding gown industry focusing on production and logistics for companies such as Pronovias, Priscilla of Boston, Reem Acra, and Marchesa. She graduated from the Chicago Academy for the Arts, a performing arts high school, and is passionate about supporting young artists. She lives Westchester County, NY and enjoys exploring the Husdon Valley with her husband and Morgan.
Learn more about our #BoardofDirectors and City Bash ⏩Link in bio.
#epilepsy #epilepsyawareness #dravetsyndromeawareness #dravetfoundation #dravet #specialneedsmom #specialneedsparenting #specialneeds at Farmer & The Fish